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Chronicles

The story behind the story

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Epic Systems, a leading provider of digital medical records, calls on large hospitals to oppose proposed US rules that would open up access to patient records

at a minimum to consumers and institutions they trust.” https://twitter.com/... Raj Ratwani, PhD / @rajratwani : Disappointing to see efforts to stop this important rule that would provide open APIs & could foster innovative solutions to usability & safety challenges. Access to patient data, if done safely and securely, is good for all patients. Thx @aneeshchopra for speaking up. https://twitter.com/... Daniel Tunkelang / @dtunkelang : Epic and Cerner have a duopoly in the Electronic Health Record (EHR) space. They are clearly more concerned with protecting that duopoly from competition than with doing what's best for patients. https://www.cnbc.com/... Lisa Bari / @lisabari : Bottom line: this is not a good faith argument. Not finalizing the rules will only benefit the largest and most powerful holders of patient data. Interoperability now! https://twitter.com/... DJ Patil / @dpatil : Epic is taking the side that they don't believe your health care data is YOURS. They want to help hospitals BLOCK your ability to take it where it needs to go. This will prevent the care people deserve. For example coordination of care for cancer patients. Rare disease and more https://twitter.com/... Adrianna McIntyre / @onceupona : Data blocking is (one of a thousand reasons) why we can't have nice things https://twitter.com/... Rakesh Agrawal / @rakeshlobster : Epic and Cerner are two of the big obstacles in having better patient care in the US. When I moved from SF to NY, NYU couldn't pull up my records, even though both health systems used epic. Of course there is no reason why they want anyone else to access the data. Lock in. https://twitter.com/... Arjun Sethi / @arjunsethi : When companies have a monopoly and extract only profit, and they forego the importance to innovate for their customers, they resort to reacting, protecting and hoarding. This is why access to your own data matters, even in healthcare. https://www.cnbc.com/... Xavier Amatriain / @xamat : Very sad to see how corporations are (ab)using concepts like “privacy” or “ethics” with the sole purpose of asserting their dominance. https://twitter.com/... Jeremiah Schuur / @jschuurmd : I was taught early on that the best way to judge care is in the patient's interest. EPIC should do better than this; patient interest should be the priority not EPIC's financial interest interoperability and patient data access is a key to better healthcare and lower costs. https://twitter.com/... @timihealth : CNBC: Epic's CEO is urging hospital customers to oppose rules that would make it easier to share medical info. https://www.cnbc.com/... Such selfish motives are costing people their lives. You should be able to own and control all of your health data! @kentbottles : Epic CEO sends letter urging hospitals to oppose HHS data-sharing rule https://www.cnbc.com/... Andrey Ostrovsky / @andreyostrovsky : Judy Faulkner is what is wrong with US healthcare. Instead of innovating and discovering new revenue models, she's trying to protect old, harmful ways of doing business. Give patients their data. Hard stop. @chrissyfarr @aneeshchopra https://twitter.com/... Diede van Lamoen / @dvlamoen : The next major monopoly suit in the US will be against Epic. They literally cause harm to consumers by making impossible to interoperate with their systems. https://www.cnbc.com/... Thanks: @mattrosoff

CNBC Christina Farr

Context & Ripple Effects

Epic Systems sits at the center of this fight because of its scale: the company claims to hold medical records for more than half of US patients, per an earlier profile of the privately held Wisconsin vendor. The proposed federal rules would require open APIs so patients can pull their records into third-party apps — a direct threat to a business built on being the system of record.

The opposition campaign did not emerge from nowhere: months earlier, [[a:945501|medical groups had already attacked the same data-sharing rules for lacking strong privacy protections]], giving Epic a ready-made argument that patient safety and data security require keeping access gated through institutions rather than apps.

First-order effects

  • Large hospital systems are being asked to spend political capital on Epic's behalf, choosing between their dominant EHR vendor's preferences and compliance with rules HHS has proposed.
  • If the rules go forward as written, app developers and patients gain direct API access to records currently locked inside Epic installations, bypassing the vendor as intermediary.

Second-order effects

  • Cerner, which alongside Epic controls the EHR market per critics like Daniel Tunkelang who call it a duopoly, faces pressure to pick a side — open APIs erode the switching costs that protect both incumbents.
  • The privacy critique from medical groups gets amplified into the central counterargument, forcing the rule's backers to defend security design rather than just patient rights.

Third-order effects

  • The pattern held: despite the lobbying, [[a:983625|federal rules requiring organizations to give patients full digital access to their records took effect on October 6, 2022]], meaning incumbents' moats shift from controlling data access to competing on workflow and usability.
  • With the US having already spent $36 billion digitizing records amid safety complaints, interoperability mandates become the lever regulators reach for when vendor-controlled systems underdeliver — a template for other gatekept data markets.

The trend: US health IT is moving from vendor-controlled record silos toward regulator-mandated interoperability, converting data lock-in from a durable moat into a contested, revocable advantage.

Discussion

  • @chrissyfarr Christina Farr on x
    SCOOP: I got the letter that Epic Systems CEO Judy Faulkner wrote today to hospital CEOs urging them to take action against the HHS data blocking rules. Here it is: https://www.cnbc.com/...
  • @erictopol Eric Topol on x
    What company is the #1 market #EHR, makes >$3 billion/yr selling (aka gouging) health systems poor performing software, and now opposes @HHSGov proposal for hospitals to share medical data for their patients? This one: https://www.cnbc.com/... by @chrissyfarr @CNBC https://twitte…
  • @thepatientsside Amy Gleason on x
    I hope none of the hospitals that I go to or my family goes to signs this letter. The point isn't to do proprietary solutions inside Epic but to allow patients and their chosen apps, as well as solutions that their providers want to use, share data how THEY want using standards. …
  • @claudiawilliams @claudiawilliams on x
    Patients can speak for themselves. And they have. They want easier access to THEIR OWN data. They want the CMS and ONC rules finalized. Epic, it's fine to represent your own interests. But please don't claim to speak for patients. https://twitter.com/...
  • @benmoscovitch Ben Moscovitch on x
    Wise words from @aneeshchopra in this @chrissyfarr scoop. “It is unfortunate to see this much effort placed at stalling the important, bipartisan progress we have made to open up health information—at a minimum to consumers and institutions they trust.” https://twitter.com/...
  • @rajratwani Raj Ratwani, PhD on x
    Disappointing to see efforts to stop this important rule that would provide open APIs & could foster innovative solutions to usability & safety challenges. Access to patient data, if done safely and securely, is good for all patients. Thx @aneeshchopra for speaking up. https://tw…
  • @dtunkelang Daniel Tunkelang on x
    Epic and Cerner have a duopoly in the Electronic Health Record (EHR) space. They are clearly more concerned with protecting that duopoly from competition than with doing what's best for patients. https://www.cnbc.com/...
  • @lisabari Lisa Bari on x
    Bottom line: this is not a good faith argument. Not finalizing the rules will only benefit the largest and most powerful holders of patient data. Interoperability now! https://twitter.com/...
  • @dpatil DJ Patil on x
    Epic is taking the side that they don't believe your health care data is YOURS. They want to help hospitals BLOCK your ability to take it where it needs to go. This will prevent the care people deserve. For example coordination of care for cancer patients. Rare disease and more h…
  • @onceupona Adrianna McIntyre on x
    Data blocking is (one of a thousand reasons) why we can't have nice things https://twitter.com/...
  • @rakeshlobster Rakesh Agrawal on x
    Epic and Cerner are two of the big obstacles in having better patient care in the US. When I moved from SF to NY, NYU couldn't pull up my records, even though both health systems used epic. Of course there is no reason why they want anyone else to access the data. Lock in. https:…
  • @arjunsethi Arjun Sethi on x
    When companies have a monopoly and extract only profit, and they forego the importance to innovate for their customers, they resort to reacting, protecting and hoarding. This is why access to your own data matters, even in healthcare. https://www.cnbc.com/...
  • @xamat Xavier Amatriain on x
    Very sad to see how corporations are (ab)using concepts like “privacy” or “ethics” with the sole purpose of asserting their dominance. https://twitter.com/...
  • @jschuurmd Jeremiah Schuur on x
    I was taught early on that the best way to judge care is in the patient's interest. EPIC should do better than this; patient interest should be the priority not EPIC's financial interest interoperability and patient data access is a key to better healthcare and lower costs. https…
  • @timihealth @timihealth on x
    CNBC: Epic's CEO is urging hospital customers to oppose rules that would make it easier to share medical info. https://www.cnbc.com/... Such selfish motives are costing people their lives. You should be able to own and control all of your health data!
  • @kentbottles @kentbottles on x
    Epic CEO sends letter urging hospitals to oppose HHS data-sharing rule https://www.cnbc.com/...
  • @andreyostrovsky Andrey Ostrovsky on x
    Judy Faulkner is what is wrong with US healthcare. Instead of innovating and discovering new revenue models, she's trying to protect old, harmful ways of doing business. Give patients their data. Hard stop. @chrissyfarr @aneeshchopra https://twitter.com/...
  • @dvlamoen Diede van Lamoen on x
    The next major monopoly suit in the US will be against Epic. They literally cause harm to consumers by making impossible to interoperate with their systems. https://www.cnbc.com/...