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Chronicles

The story behind the story

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Source: NIH and Google planned to launch a dataset of 100K chest X-rays in 2017, scrapped project days before launch, after finding personal info on some images

Fumbled project with NIH highlights potential pitfalls of Google's ambitions with sensitive health data

Washington Post

Context & Ripple Effects

The Washington Post's reporting reveals that Google and the [[a:|NIH]] scrapped a planned public release of 100,000 chest X-rays at the last minute in 2017 after discovering personal information embedded on some images — an early stumble that predates the company's bigger health-data pushes. It landed just as Google's health ambitions were surfacing publicly: days later, sources described the partnership with Ascension to analyze records of millions of patients under Project Nightingale.

The near-launch also sits inside a documented pattern of medical imaging leaking at scale — researchers had already found 16M identifiable scans online, and later reporting put unsecured medical images at over a billion — meaning the de-identification problem Google caught is one hospitals themselves routinely fail to catch.

First-order effects

  • Researchers who were set to use the 100K-image dataset lost access to it entirely, and NIH and Google absorbed the reputational cost of a privacy failure caught internally days before going public.

Second-order effects

  • The episode feeds the scrutiny around Project Nightingale and the Ascension deal, handing critics a concrete example that Google's internal review processes are the only barrier between patient data and public exposure.

Third-order effects

  • If large-scale medical AI datasets keep hitting de-identification failures, curation shifts from an academic task to a compliance function — favoring players who can absorb audit costs and pushing public-private dataset releases toward stricter consent frameworks rather than scraped imaging archives.

The trend: Medical imaging is becoming AI's most contested data frontier, with de-identification failures at both hospitals and research institutions forcing every large dataset effort into a de facto permission fight.

Discussion

  • @farhanible @farhanible on x
    Sounds like they were provided data by NIH that was considered de-identified (and , therefore, no longer in scope for protection under HIPAA) and then someone at NIH realized that they hadn't done a good job of de-identification. This is largely on NIH, not Google.
  • @tonyromm Tony Romm on x
    NEW: Google almost made 100,000 chest X-rays public — until it realized personal data could be exposed. Important story given the health news this week. Via @dmac1 and @GregBensinger https://www.washingtonpost.com/ ...